Co-Design for Dementia Care


Dr. Alison Luke, Research Associate with the Center for Research in Integrated Care (CRIC) at the University of New Brunswick Saint John, and Amy Reid, Project Coordinator with the CRIC, joins the show to discuss their project Co-Designing Dementia Care.

We’re all aging, and everyone’s talking about it!

Key Takeaways

[:40] Jenna welcomes today’s guests Dr. Alison Luke and Amy Reid and invites them to explain a bit about the Co-Design part of dementia care and the multi-country and scope of this five-phase project.

[4:49] Amy touches on how this five-country — and three-Canadian-province — project was orchestrated, the protocol that was followed by all participants, and some of the challenges they faced.

[8:33] Communicating information about dementia comes with its own set of particular challenges; Dr. Luke touches on how these challenges affect the healthcare providers and the family, as well as the patient.

[14:05] Phase 1 (the needs assessment phase) of the project provided interesting learnings on how the diagnosis affects care providers and patients, but it also showed some positive aspects of receiving this diagnosis.

[16:28] Accessing care post-diagnosis is a reality, Dr. Luke speaks to “you don’t know what you don’t know” as well as how a few other ways empowering people can prevent a lot of negative outcomes.

[18:18] Dr. Luke highlights the importance of their main community partner, the Alzheimer’s Society. She also shares the long list of other contributors who helped make this project possible.

[20:45] The website, which launched on November 15th, works to spread awareness, Amy also shares the other functions it fulfills for patients and caretakers.

[22:41] What does the future hold for such a large project? Dr. Luke talks about Phase 5 of the project on sustainability led by Poland and the WHO representative that is helping move this forward.

[25:21] Jenna thanks Dr. Alison Luke and Amy Reid for coming on the podcast. Until next time, subscribe, rate, and share!

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Mentioned in this episode
The MileAGE Podcast
Forward with Dementia
Alzheimer’s Society of Canada
Horizon Health
Department of Health

To share your experiences about accessing dementia care, or to give feedback on the Forward with Dementia initiative, please visit the evaluation page on their website here: Forward with Dementia. There are several ways to participate, including a short survey or an individual interview. The team is looking forward to hearing from persons with dementia, care partners, as well as health or social care providers. 

For general inquiries about Forward with Dementia, contact:

More about your hosts
Jenna Roddick at APPTA
Jenna Roddick on Twitter
Jenna Roddick on LinkedIn

More about today’s guest
Dr. Alison Luke is a Research Associate with The Centre for Research in Integrated Care (CRIC) at the University of New Brunswick Saint John. She was the Crawford/Jarislowsky Post-Doctoral Fellow in Health Policy from 2015-2018. Alison completed her PhD in Sociology at the University of Waterloo. Alison’s research focuses on the development, implementation, and evaluation of models of care that seek to improve integration and care coordination in the healthcare system. Most recently, she is working on several projects that seek to improve care coordination for individuals with complex care needs, their caregivers, and members of the care team.

Find out more about Dr. Alison Luke on the University of New Brunswick Saint-John website.

Amy Reid is a Project Coordinator at The Centre for Research in Integrated Care (CRIC) at the University of New Brunswick Saint John. She completed her Undergraduate degree in Psychology at St Thomas University in 2017, followed by her Master’s in Applied Health Services Research at the University of New Brunswick in 2019.

Find out more about Amy Reid on LinkedIn.